About this site...

I have had a life threatening illness for seven years. It has brought me down. It has taken most of what I own. I am in debt. Yet, I still see the good in life. Take a look at life through my eyes. There is something wonderful to see everyday, if we stop to look.

About the author...

My name is Steve. My friends call me SOwens. I am a Cushing's Disease survivor. I have fought this disease for years. On January 30th, 2009 I had a radical surgery bilateral adrenalectomy (BLA) in the attempt to cure it. This is my day to day struggle to recover and win. My goal is to tell my story the only way I know how, from the heart.

Weaning sucks...

Cutting the steroids still. I am down to 25-15-15mg. I am taking them 7-8am, 1-2pm, and 5-7pm. I am sore and sucking on some pain meds. I have some nausea with it as well. I am still sleeping pretty well. I cooked dinner tonight and you would have thought I ran 5 miles. It wore me out.

Kind of thought I would be feeling worse than I am. I mean, I feel bad. It just isn't as bad as I felt prior to surgery. I am surprised. I am glad and I am hopeful. Things sure feel different these days. My sodium, electrolytes and potassium are all at good levels. The medicine to control it is working.

The brain fog is still rampant. I can manage to think through it though. I could before, but it might be a bit better. It is a very hard thing to do. Complex thought processes are my bread and butter in the job I worked at. They are holding my job for me, but I am not sure I will be 100% when I do go back. The doctors told us months ago they thought there were some permanent damage in the thinking process. I guess time will tell.

I can still write so I have hope I will be back into work. If I have to I will learn to adapt in my thought processes and how I do my job. Life is about change. I was sick for many years. Surely some things will never be the same. It doesn't mean I won't figure out a way around them though. I have hope.

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