About this site...

I have had a life threatening illness for seven years. It has brought me down. It has taken most of what I own. I am in debt. Yet, I still see the good in life. Take a look at life through my eyes. There is something wonderful to see everyday, if we stop to look.

About the author...

My name is Steve. My friends call me SOwens. I am a Cushing's Disease survivor. I have fought this disease for years. On January 30th, 2009 I had a radical surgery bilateral adrenalectomy (BLA) in the attempt to cure it. This is my day to day struggle to recover and win. My goal is to tell my story the only way I know how, from the heart.

There's no place like home...

Soon, I would start to wake up more and I would begin focusing on my first goal, getting out of the hospital. To do that, I knew they would subject me to tortures I didn't want to do...like eating

I'm not really sure why they want you to eat solid food before you can go home. I'm sure they have their reasons and I ate a bit of what they gave me. The sore throat from surgery made it hard to swallow.

Soon, they were happy. I was up and walking. The pain was generally under control. I couldn't walk more than a few feet without going out of breath, but that just seemed to be a function of hacking into my belly than anything else. The torturers that were the nurses and doctors were happy now. I could go home.

I was happy to be out, till I learned one thing. Hotel room beds may be comfortable to most people, but they don't have rails and they sit to dam low. The pain that was so absent in the hospital was a product of a personal pain pump and a bed with rails that raised and lowered.

It would take two days and two very sleepless nights to start getting more comfortable. I just kept walking and sleeping when I could. Soon, the couple steps got longer before I was winded. I could walk further and bend a little more. The days dragged on.

We went to see the surgeon for follow up 5 days after surgery. He seemed surprised I was getting along so well. I guess I was surprised too. I had holes all over my sides and back, 11 to be exact. Some small and one very large one. They were all sore to some extent.

The surgeon gave us the go ahead to go home that Friday. We jumped on it. I went back to the place we were staying, Kathy's House. I ended up resting as much as I could. I knew I needed it and the trip home was going to be rough. Six and a half hours doesn't seem like much, but it is when it hurts. The good thing is, I ended up sleeping most of the way home and we made it without incident. It felt good to be home. I wasn't sure how the bed was going to be...

1 comments:

  1. ReadyGo said...
     

    I've been reading your blog and thinking positive "cure" thoughts for you. Thank you for writing your experience!

    I tagged you on my blog!
    -Amy

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