How low can you go...
I started this BLA journey at 150mg of cortef. I am down to 25mg. I am doing ok. Ok is a relative term. if you call severe muscle and bone pain, joint pain, impaired memory, low stamina and no immune system ok, then I am doing super!
As bad as that all sounds, I do feel better than I did with Cushing's Disease. The weight is melting off in dribbles. My body is reshaping itself more than the weight loss should show. I think that is all part of recovery. From above the stomach up, I am starting to look more like my old self. The stomach still needs work.
What I am finding on 25 mg is slight signs of AI. It is subtle but it is there and I have to wonder if that is normal, at least till I adjust. I never thought I would get below 32.5mg, but here I am. I think as my body heals and the weight is coming off, I think I am able to lower them doses. Where I took four doses a day, I know take 2 and occasionally take a very small 2.5mg in the evening if it warrants.
It isn't all easy, but I am doing ok. I strain to do 15 minutes of house work without having to rest for hours. I think in time, this to will get better. The pain, I am not so sure. I will gladly live happy with all this and be thankful that the Cushing's Disease is gone. I am working hard to improve all those symptoms. Time will tell.
As bad as that all sounds, I do feel better than I did with Cushing's Disease. The weight is melting off in dribbles. My body is reshaping itself more than the weight loss should show. I think that is all part of recovery. From above the stomach up, I am starting to look more like my old self. The stomach still needs work.
What I am finding on 25 mg is slight signs of AI. It is subtle but it is there and I have to wonder if that is normal, at least till I adjust. I never thought I would get below 32.5mg, but here I am. I think as my body heals and the weight is coming off, I think I am able to lower them doses. Where I took four doses a day, I know take 2 and occasionally take a very small 2.5mg in the evening if it warrants.
It isn't all easy, but I am doing ok. I strain to do 15 minutes of house work without having to rest for hours. I think in time, this to will get better. The pain, I am not so sure. I will gladly live happy with all this and be thankful that the Cushing's Disease is gone. I am working hard to improve all those symptoms. Time will tell.
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