The ugly side...
I never really had problems mentally with Cushing's, at first. I would read about this from people on here and would skim over it. It didn't pertain to me and actually, I wondered if it was Cushing's causing it at all. I never wanted to believe Cushing's caused all this "stuff". By stuff I mean the mental and physical manifestations of Cushing's Disease that aren't generally spelled out in the symptom's charts. It wasn't happening to me, so some of it was hard to believe, if I am being honest.
Here I sit years later after two surgeries and one that finally cured me 4 months ago next week. I went down hill in the later half of 2008. That is physically and mentally. The mental stuff got worse in June 2008 or there about. I think I barely held my sanity and finally told the doctor in November of 2008 some of what was going on. It was the first time the wife had heard of it. I am not so sure I haven't slipped over the edge sometimes.
Fast forward to January, 2009 and the BLA. I expected to feel better and I did. However, the mental side of things is really no better. It is something I hate to share but I feel people need to know these things happen. It is real because my mind thinks it is, even if I know in my heart it isn't. It is not how I expected my cure to go and it certainly isn't something I like to admit.
Life is better post Cushing's and I expect it to continue to improve. Better is a relative term. Just going one day at a time. I hope I can wake up one day and take my cortef and florinef and forget Cushing's is the reason why. You got to have goals, right?
Here I sit years later after two surgeries and one that finally cured me 4 months ago next week. I went down hill in the later half of 2008. That is physically and mentally. The mental stuff got worse in June 2008 or there about. I think I barely held my sanity and finally told the doctor in November of 2008 some of what was going on. It was the first time the wife had heard of it. I am not so sure I haven't slipped over the edge sometimes.
Fast forward to January, 2009 and the BLA. I expected to feel better and I did. However, the mental side of things is really no better. It is something I hate to share but I feel people need to know these things happen. It is real because my mind thinks it is, even if I know in my heart it isn't. It is not how I expected my cure to go and it certainly isn't something I like to admit.
Life is better post Cushing's and I expect it to continue to improve. Better is a relative term. Just going one day at a time. I hope I can wake up one day and take my cortef and florinef and forget Cushing's is the reason why. You got to have goals, right?
Steve,
I'm so sorry you're going through this. I have always thought, as a bystander, that the mental aspects of Cushing's seemed much more scary than the physical.